{"id":27259,"date":"2026-05-22T06:00:59","date_gmt":"2026-05-22T11:00:59","guid":{"rendered":"https:\/\/www.ataxia.org\/?p=27259"},"modified":"2025-10-17T13:33:54","modified_gmt":"2025-10-17T18:33:54","slug":"maitreyi-viswanathan","status":"publish","type":"post","link":"https:\/\/www.ataxia.org\/maitreyi-viswanathan\/","title":{"rendered":"Maitreyi Viswanathan"},"content":{"rendered":"\t\t
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The video above is from Maitreyi’s personal YouTube channel, in which she discusses her experiences living with Ataxia. <\/em>Mature topics are discussed, viewer discretion is advised.<\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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When Were You Diagnosed? Which Type (If Known)?<\/strong><\/p>

Toronto, ON, Canada – SCA Type 2<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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How Has Ataxia Impacted Your Life?<\/strong><\/p>

Negatively. This all started manifesting, well into me being an adult, and already having in mind how I was going to navigate the world physically and emotionally.\u00a0 Then at about age 35 I had to change pretty much everything to keep myself at some level of positive mental health. Happened pretty much at the same time that everything in the world started catching fire so my personal issues were tied very heavily into things being difficult in the world at large.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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What is One Thing You’d Like the People to Know About Ataxia?<\/strong><\/p>

The emotionality and mental health issues are just as bad as the physical ones but nobody talks about them. That you have to grieve\/make peace with your body not working the way you want it to while at the same time figuring out what your new reality is going to look like – incredibly complex mentally and physically too because you have to just “try stuff” and see what works.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Share Your Advice – How Can Others Support Someone with Ataxia?<\/strong><\/p>

Normalize talking about it. The more it can be acknowledged without judgement, the easier it is to navigate because it fees like not as big a deal.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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How has NAF Helped You or Your Family?<\/strong><\/p>

It has introduced me to advances and research in the space and given me confidence to live a fuller life and not be such a hermit.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Disclaimer:<\/span><\/span><\/strong>\u00a0<\/strong>The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.<\/span><\/span>\u00a0<\/span><\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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What is Your Ataxia Story?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Are you here to read the personal stories, but haven\u2019t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to\u00a0join as a member<\/a><\/strong><\/span>\u00a0to receive a new member story each month. It\u2019s free, and you\u2019ll be kept up-to-date on the latest developments in the Ataxia community.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Recent Member Stories<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\n\t\t\t\tBen Williamson\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
\n\t\t\t\t\t\n\t\t\tMay 29, 2026\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t
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Living and Dying with Spinocerebellar Ataxia Type 7: A Carer\u2019s Perspective Affiliation: Husband and primary carer of patient with confirmed SCA7 (ATXN7 gene, 10\/49 CAG Read More…<\/a><\/p>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/article>\n\t\t\t\t

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\n\t\t\t\n\t\t\t\tMaitreyi Viswanathan\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
\n\t\t\t\t\t\n\t\t\tMay 22, 2026\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t
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http:\/\/youtu.be\/sYccDzT25eY?si=f6GkonkY4FvsyFHy The video above is from Maitreyi’s personal YouTube channel, in which she discusses her experiences living with Ataxia. Mature topics are discussed, viewer discretion is Read More…<\/a><\/p>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/article>\n\t\t\t\t

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\n\t\t\t\n\t\t\t\tAna\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
\n\t\t\t\t\t\n\t\t\tMay 15, 2026\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t
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When I turned 20, I started to notice something was different about me. I had a brain MRI, which showed that I probably had Ataxia. Read More…<\/a><\/p>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/article>\n\t\t\t\t

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\n\t\t\t\n\t\t\t\tTracy Britt\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
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I am a Registered nurse who recently went on disability for Spinocerebellar Ataxia. My family tree is full of members with this same illness. I Read More…<\/a><\/p>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/article>\n\t\t\t\t

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\n\t\t\t\n\t\t\t\tAdam Zea\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
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I have a beautiful wife and 3 grown kids. I have always been very active, running track and cross-country in high school and road races Read More…<\/a><\/p>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/article>\n\t\t\t\t

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\n\t\t\t\n\t\t\t\tAude J\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
\n\t\t\t\t\t\n\t\t\tApril 24, 2026\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t
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Note: Aude submitted her story in French. ChatGPT was used to translate her submission. The translation may not be accurate. We will include her submission Read More…<\/a><\/p>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/article>\n\t\t\t\t<\/div>\n\t\t\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tVIEW ALL MEMBER STORIES<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

http:\/\/youtu.be\/sYccDzT25eY?si=f6GkonkY4FvsyFHy The video above is from Maitreyi’s personal YouTube channel, in which she discusses her experiences living with Ataxia. Mature topics are discussed, viewer discretion is advised. When Were You Diagnosed? 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